The topic of lichen sclerosus (LS) is close to my heart because I personally suffered from its symptoms for years before receiving a diagnosis. At 23, I visited at least five different gynecologists to find a solution to my problems. I remember asking one of them if it was possible I had LS, as I had looked up “Dr. Google” and my symptoms matched all the criteria. Their response was, “No way, you’re too young.” My personal experience with sexual health over the years ultimately redirected my career, and I now work as a pelvic health physiotherapist.
Over the decade I've spent treating pelvic health, I've learned that this doctor's statement was far from accurate. Approximately 50% of women experience their first symptoms of LS before menopause. For many of my patients, I'm often the first professional to take the time to carefully examine their vulvar anatomy. If I notice signs of labial fusion, I delve deeper into the examination to check for a history of other symptoms commonly associated with LS. These include vaginal fissures during penetrative sex and frequent self-diagnosed "yeast infections" that are not accompanied by altered vaginal discharge. Being aware of these signs has allowed me to refer many young women to the appropriate medical care they need.
Symptoms of LS can range from mild to debilitating, and early detection is essential to prevent them from progressing to this final stage. Fortunately, I have established a strong network of knowledgeable physicians to turn to when I suspect a patient has LS. Along with appropriate medical care, a comprehensive physiotherapy approach can help alleviate symptoms and restore sexual well-being.
Kim Kearvell, Pht, MSc, Cert. MDT
